I need help, opinions, ideas, ANYTHING from anybody please...

 

I believe I have Peripheral Neuropathy (PN), effecting mostly my feet, some in legs. hands, arms. The pain is like a cigarette lighter and knife stabs in my feet mostly, the worst starting in late afternoon.  Hospital Neurologist confirmed PN, as well everything I read on line.  My current working Neurologist has not confirmed ANYTHING yet.

 

The worst symptoms have come in the last 5 weeks for me.  Summertime I had very sore/hot feet, not knowing what it was.  I remember having hot feet for 1-2+ years in the late evenings.

 

My own thinking on the cause for me might be:  

Lead in my body (pellets in foot 37 yrs, & 20 yrs ago I was into StainedGlass/lead soldier).

Immune system problem (Several flu's & Pneumonia Jan-May 2007)...well since then.

Absorption problem of vitamins (diarrhea often for years, thought from gall bladder removed)

Sciatic nerve (I have some pain), my Chiroprator can't confirm.

 

I don't have Diabetes or alcoholism.

 

I'm seeing a Naturapath & a Neurologist.  They don't agree on much.  Finding the cause and doing tests is exceedingly slow and drives me absolutely nuts!

 

Tests so far:

Leg/feet scan (Doppler) for circulation - I'm great!  No heart problems.

Electromyography EMG last Thursday: Motor good, Sensory borderline - waiting for Neurologist reactions.

No blood work by Neurologist yet.... he's sure slow!

Quick blood test for lead by Naturapath says nearly no lead, BUT Urine test shows LEAD HIGH but almost all Doctors won't take urine test seriously AT ALL including poison center.

Naturapath wants me to continue lots of vitamins, Neurologist fights the idea tooth and nail.  Naturapath started me on Captomer, a heavy metal pill that can leach out lead, 1 week ago, Neurologist does know yet and I anticipate very NEGATIVE and may stop me.

 

I know I need to find a very good Internal medicine Doctor which I will be working on this week, I don't have one.  I fired 2 Doctors in Jan-May when they did not help me when I had Pneumonia then.

 

Medications:

Gabapentin for pain

Captimer

Vitamins (lots, but not too much B6-B12, Niacin in case problem with PN)

 

Accepting that I cannot walk/stand very much at all has impacted my life tremendously.

Can't work or earn money any more for past month+.  My butt hurts from sitting so much.

 

I spend a lot of time researching this problem, I'm the one who first pinpointed it.

I can't do much in chores at all, family under pressure to do so much more now.

Financially, our insurance isn't the best, and our debt is mounting. 

 

I've cried more tears in the last 4-5 weeks than I have in 20 years altogether.  Tears are good though...

 

I'm a stubborn old goat, and I will find a way to either find out what the real problem is and do something about it, OR I will accept it and figure out how I can still LIVE.   Considering a disability card for my Van, possibly a cane, and maybe even Social Security (eventually...)...  Yes all very devastating to me.

 

Positives in my life?  My family loves me.  I still have a home.  We have food.  I love God and He loves me.  I DO have friends.  And I'm NOT dying!