Hi,Guys another PNer maybe (long story) had symptoms for nearly
5yrs,gone thru 2 Neuro,s who have given up on me.Totally numb from just
below boobs been like that for a year or so maybe more,my brain is
fried from all the bloody medication over the yrs,gone off the rails a
bit now where was i, it has now started in my arms but im not sure
about my hands one minute im holding something then im not.And if you
asked me to touch your nose there is no way in hell my finger would end
up there it sort of has the wobbly boot effect,it just doesn,t have the
PN sound about it (then again what does)Anyone out there with any
thoughts on it appreciate it,also looking for new Neuro 1 who gives a
sh!t I live in Queensland,Australia any idea ?????i need help
here....Liz.

My name is Tammy. I live in Pensacola, FL. I suffer greatly with pn and
many other illnesses. I have dysautonomia, gastroperesis, and
tachycardia. I just recently was forced to retire from my job as a
teacher (15 yrs). I do not post much. I am NOT a troller or spammer.
Guess i could be called a lurker, tho. I simply read all of the groups
I sign up for to gain  better insight and hopefully some relief.
However, feel free to email me or message me and I will be happy to
reply.

Hello everybody. My name is Stefan and I have been living with peripheral
neuropathy in my
feet for many years. I suffer from chronic insomnia as they burn all night long.
I'm on meds
for them but they don't seem to really work. I was thrilled to come across this
group as I have
been getting very depressed about it all. Look forward to chatting with you.
Cheers & best of health
Stefan

Welcome all you new people to the web page it is nice to have you
with us
Had a bit of a drama at Physio today and it has left me very upset
and depressed.

Was trying to walk up a set of 3 stairs got to the first one and my
short term paraplegia kicked in same thing happend on the other 2
remaining stairs and then as my legs were unsteady I sat down, upon
trying to get up it took a super human effort to stand again, one of
the physios came rushing to my aid and called for assistance
eventualy they got me upright by that time I was exhausted and there
was more than one tear in my eye.
I did eventualy recover and get home and then I just started to cry
uncontrollably for a period.
Feeling not to bad now but once the Grand children go I am going to
bed, I am wondering if the stress of my brothers condition and my PN
condition just became to much.
I was supposed to help out at the Hospital this afternnon but was
unable to.
Still I must not give up and but boy some time it is realy hard.
Sorry for my long epistle but i just needed to talk to my friends.

Hi Everybody.I have a question.I suffer the neuropathy in both feet
and both hands.Lately the pain has been more in my left foot.Is this
normal?
I also get the spasmotic and shooting pain.More so at night.Is there
anything I can do or take?I have tried almost every medication and
nothing seems to work.Except for the ones not on the cheaper list like
Lyricia.

Sorry I havent been looking at the board that much, I have been a
conmbination of busy and sick - mostly at the same time LOL!

So you've been diagnosed pre diabetic?  Interesting, by this do the
doctors mean insulain resistance?  If so you may have Poly Cystic
Ovarian Syndrome of which one of the major characteristics is
insulin resistance.

Some with PCOS dont develop it until after they hav had children
whilst others develop it all throughout their childbearing years -
that is me - making it difficult and sometimes impossible to
conceive.  I tried conceiving for 20yrs had 2 miscarriages 10 years
apart and finally had my beautiful son 2yrs ago.  Being pregnant
with PN is no picnic believe you me!  And now I am struggling and if
it werent for my wonderful husband who is my main carer as well as
my son's, I would have gone round the bend!!!

Talk to your medicos about using a product called Metformin - used
to treat insulin resistance in diabetics. I take it and I know it
helps a little with the PN and in our world, every little bit helps.

Well I have to go now, have a busy 2 yr old to contend with and also
some work to do.

Bless you and take care

love

Debbie

Hi everybody.I just joined the group.I live in Canberra.Iam a widow
of 3 yrs.I have 3 adult children and one adorable grandson.I suffer
with this painful condition.It effects both my feet and hands.I off
course have diabetis which is mainly controlled by medication.I look
forward to getting to know you all,and maybe learning about way to
cope with this cruel and painful condition.

Hi there in sunny QLD!

Glad to see someone posting here, been very quiet.

Like you, I have PN from no real known cause, although I have my
theories.  I am up late tonight trying to actively block out the pain
in my body that has kept me awake.  I dont fancy yet another shower so
the computer helps a bit to take my mind off the pain.  Just hope I am
awake enough in the morning for work.

What types of treatment, drugs, therapies do you use to help with your
PN and how does it affect your life, besides making you feel like you
are going crazy LOL!  I am interested to know how others cope

love

Debbie

HI there,

Just wanted to say I think this support group is a great idea!  I
look forward to sharing with other sufferers of PN and perhaps
learning some ways to cope with PN, and maybe able to pass on a few
tricks myself.

I am from Glendenning - outer west of Sydney, NSW Australia. Have
had PN for quite a few years now - progressing along despite drugs
and treatments with natural meds.  I am not on any meds like
neurontin or topamax any more as they sent me silly.

I cope by trying to keep my mind active and off the pain sensations
that travel along my body.  In some ways I have learned to live
with 'fire ants', 'hot oil pouring over my body' and 'the stings of
a thousand bees', and not to mention 'walking on cut glass' every
time I take a step.

I have a fun theory that if all the PN sufferers in Australia
united, the 'electricity' we feel running through our bodies could
save the energy giants of this land a heap of money!  I personally
think I generate enough electricity to light up western Sydney!

Take care everyone,

Be gentle with yourselves.

I look forward to getting to know you all

Dobbieray

Great to see another support group for those in need... I don't have PN myself but I do know what it's like to live with a chronic illness. I know it's effects on you, your family & friends...

So keep fighting the good fight, never give up or give in and always remember...

Behind the Cloud, the sun is still shining...

Steve

Welcome to the site and please bear with me as this is all new to me,
In lovely Camden just ouside of Sydney in the Great Southern Land it is
a beautifull morning and I am feeling pretty good considering the wife
and I painted our bedrooom over the weekend, we were pretty fed up with
the dark gold colour it was previously, now it is a soft green.