Hi if you have ticks please freeze them if you arent sending them straight away

send them to me or marla ny address is cahain@...

and i will give u my postal address
  cheers nat

I send this out every 10 days to 2 weeks for new folks who might not have seen
it. Sorry to spam but its the easiest way I know to let newcomers hear about it.

This was last sent 09/4/09

Scott Adams
---------

Hi!

This is an open letter that may be shared and reposted, in its entirety.

Chronic Lyme is frequently misdiagnosed as ALS, CFS, FMS, MS, Parkinson's and
many others. Please see the open letter appended to the end of this document.
Perhaps you or a loved actually has Chronic Lyme instead of one the above? If so
there is HOPE and a way towards health!

It seems in the world of misdiagnosed Chronic Lyme it's hard to get antibiotic
treatment and if you can its even harder to get any insurance company to pay for
it.

The good news is there are treatments that folks are doing that seem to help and
they are way less expensive than antibiotics. And many seem to think they might
be safer too!

In no particular order here are some of them: herbal supplements, rife type
electronic machines, Colloidal Silver, Salt/C regimen. They are even more!

Note I am not a doctor and do not prescribe or recommend treatments. But I do
collect information on what others are doing and how its working for them.

I have a free Computer text CD of information that I have collected over the
last couple years helping my wife fight Chronic Lyme. And yes she is doing MUCH
better now than she was then! Praise God! She has not had any regular
antibiotics other than an initial short term dosage two years ago.

There is no copyright information on the CD but simply information I have
gleaned from reading literally 100s of emails a day form different support
groups and other web based data. I pick and choose what seems to me the most
relevant. It is not a comprehensive set of data by any means but it does contain
allot of gems.

I send the cd out postpaid to anyone in US or Canada who sends me a mailing
address. If possible please have it in your email in 3 or 4 lines so I can do a
quick copy and paste. For example:


Please send me your free Lyme Resource Cd to:
Scott Adams
706 Walnut Dell Rd
Platteville WI 53818

And note I never share the private addresses of people with anyone else. I use
them only to send out the CDs.

The information is broken down in easy to find categories, such as Related
Symptoms, Body, Other Illnesses, Treatments, Research etc. Note this is full of
text documents and is NOT a music CD or video DVD.

I am constantly updating it and make a batch a week to send out. It's a
Christian ministry for me and I don't charge for it.

I will respond to every request with an email (usually within 24 hours). If you
don't get the email then assume I never got your request and resend it!

Note you can also download the information in a single zip file (About 150
megabytes) from my website at:

http://www.msadams.com/Lyme/Lyme_Resources.zip

I update this file on the website at least monthly and it will usually contain
the most recent information.

If you decided to download the file I suggest simply storing it on your desktop.
You can then open it as a folder and read it.

If you do get the information from Cd or download and find it useful I would
appreciate an email. That way I will know to continue the ministry. As long as
folks find it helpful, I will continue.


Scott Adams
msadams@...
www.msadams.com

----------------
This is an open letter that may be shared and reposted, in its entirety.
It went to the IDSA guidelines review panel, along with 10 copies of my new
book The Baker's Dozen & the Lunatic Fringe: Has Junk Science Shifted the
Lyme Disease Paradigm? as well as a 5 page letter including excerpts and
references for the panelists to review. Here is the basic text of the
letter. -- PJ Langhoff

- -

March 25, 2009

Dear Esteemed Guidelines Review Panelists,

I am a Lyme patient, mother of 2 Lyme infected adults, award-winning author,
advocate and medical researcher who probably acquired Lyme congenitally.
However after our most recent tick bites, my family was forced to wait 13
years for an accurate diagnosis of Lyme disease despite nearly 100 physician
and ER visits. This unnecessary delay occurred despite the fact that I
removed ticks from myself and my then toddlers and we had bull's-eye rashes
and other acute Lyme symptoms.
Over time I progressively lost physical ability to the point of being unable
to walk, work, drive, think, use the left side of my body, etc. I suffered
intractable pain for years. My family and I were sick all of our lives
because no doctors would touch the words "Lyme disease". One physician told
me behind closed doors he was "not allowed to diagnose"
Lyme patients, or put the words "Lyme disease" in patient charts for fear of
reprisals. I spent 10 days at the Mayo clinic in Rochester, MN whereby I was
refused Lyme testing despite my symptoms and lengthy medical history.
Repeatedly I heard "there is no Lyme in Wisconsin"
which was patently ridiculous. Indeed your panelist Yale's Dr. Paul Duray
performed tick surveys on WI military bases around the time my family was
most recently bitten (in the 1990s). Reports indicated that areas of WI were
Lyme endemic at that time. Note I lived just 2 hours from one of those
endemic bases. It is felt that my parents, siblings, and probably children
also have Lyme, acquired congenitally. Many of us have been re-bitten and
have active Lyme infections and progressing symptoms despite repeated
antibiotic treatments.

Later on, as if chronic illness was not enough of an insult to my family, I
was forced to fight over 12 years in family court to retain custody of my
children post-divorce, yet eventually lost all parental rights in short,
simply because I had Lyme disease. That occurred despite expert physician
witnesses and laboratory tests clearly showing my family Lyme positive, even
by CDC standards. One judge said I didn't "look sick". One of my children
ended up in a psychiatric ward for observation due to Lyme induced
depression. We have lost homes, jobs, reputations, finances; filed
bankruptcy, fought disability providers, and insurers just to get
medications and treatments that were life-saving, covered; and most were
paid out-of-pocket. I have had to endure years of oral antibiotics that do
not work, fulminant symptoms, intramuscular and IV therapies, surgical
operations, the loss of several organs, and CNS, joint, and brain invasion
by organisms that could have been successfully treated at onset if those
whom have been holding the purse strings of information censorship had been
speaking the truth about spirochetal infections; instead of silencing a
growing epidemic in exchange for what has appeared to be profiteering and
notoriety.

I have fought hard to defend Lyme treating physicians because of what the
medical boards are doing to them (pulling their licenses or other
sanctions) because they dare to treat patients outside IDSA "standards"
of care that are no one's standards - "standards" that are merely
recommendations, and which clearly do not work. This is a tragic situation
when our own physicians cannot treat patients in favor of insurance
companies or a handful of powerful academicians who dictate medical dogma,
the former without a license, the latter without practical clinical
experience. Corporatized medicine serves no one except the profiteers; and
certainly not the ill patient populations.

Sadly, our family's tragic situation is not unique. I contend that if
restrictive Lyme disease medical guidelines such as those promulgated
unilaterally by the IDSA in 2000 and again in 2006, which deny aspects of
this illness and minimize others, are allowed to proliferate, then more
families will be facing the kinds of tragic destruction, discrimination and
denial that our family has unnecessarily and unjustly, but for the sake of
research dollars and promoting for-profit pipelines.

I urge you to carefully consider the long-term consequences of clinical
practice guidelines that are intended to serve as recommendations and not
mandate for treating physicians. The current restrictive IDSA guidelines and
processes that allow academicians to patent and profit upon technologies
also allow insurance companies to deny patients a right to become healthy
and whole. This is additionally disturbing when we see that some of the
academicians who are also guidelines panelists have conflicts of interest
including patent holdings, and are paid consultants to pharmaceutical and
insurance companies and witnesses in litigation. That some of these
individuals have ongoing vaccine and diagnostic test involvement; as well as
a role in the establishment of "standards" and information dissemination is
intensely troubling when that information denies aspects of illness, as the
IDSA guidelines do for Lyme disease. It is clear that some of these parties
well know the severity of this illness but patently refuse to budge on more
recent opinion. Perhaps this is because they and their associates stand to
lose much if they admit to the truth about this illness. How unfortunate for
those ill with this disease that power, profit, and reputations appear
greater than the welfare of people globally. You have a chance to change
things for Lyme patients for all of history right now, but only if you
choose truthfulness over ongoing censorship for profit and private agendas.

In all fairness to patients who are to benefit from current and future
guidelines, we request full consensus in writing medical guidelines, even
when guidelines are merely recommendations. This process must include all
current research (not just that put forth by a few panelists); everyday
experiences of our treating clinicians, and valuable patient input and
experience - and I thank you for the opportunity to provide such input at
this juncture. It is my hope that this open public input period is truly
meaningful and not just a token conciliatory gesture for patients whereby
the end result will be to nevertheless uphold the 2006 IDSA guidelines that
patients, physicians, and others clearly do not want nor accept as
legitimate. We do not want or need biased, rubber-stamped, disease
dismissing, for-industry guidelines that place profits above human
suffering. And patients will be far more vocal about this the longer it
continues to occur until these practices cease to exist and those held
accountable for these practices when they occur. Illness does not equal
powerlessness, and those who are ill, expect and deserve better than what we
have been spoon-fed from previous clinical practice guidelines for Lyme
disease and some of its panelists.

After all, we are learning the truth about this disease; from study of all
available documents, and from personal experience living with these
infections. From our perspective, the guidelines and some of those who have
been involved with the Dearborn criteria, the guidelines formation,
diagnostic and vaccine technologies, and who also are grant recipients, and
patent holders, currently appear far from truthful about this growing
epidemic. The current guidelines are inaccurate and reflect a desire to
restrict patient and physician access to life-saving medications and
treatment processes. The unfettered censorship of our physicians by academic
mandate disguised as "recommendations" is most unwelcome in the
patient/doctor relationship, and the toying of our health by insurance
companies who whimsically misinterpret the IDSA guidelines is as dangerous
to human life as Borrelia burgdorferi is, when left untreated or
undertreated.

Clinical trials and controlled studies are necessary aspects of medicine.
However, the practical patient experience has been shifted to the back
burner in favor of academic "expert" opinion and research funding, including
by those who do not see patients, or who occasionally do but who have only a
limited patient sampling with one or two symptom presentations. Adhering to
unilateral thought regarding a limited number of patients in favor of
controlled, funded studies over time is an unrealistic approach that is
woefully out of touch with the clinical experience. An absence of
"scientific" proof is not proof of absence.
Physicians who treat thousands of Lyme patients were, and are summarily
excluded from the IDSA guidelines process, along with a former panelist who
was excused for not agreeing to the "expert" opinion of other IDSA
panelists. (Experts who again, do not have practical real time experience
treating patients in a clinical setting.) The patients are crying out loudly
for these processes to change, for our welfare, and for the future welfare
of all persons yet to be infected with this devastating illness.

To that end, one of my recent books from my Lyme "It's All In Your Head"
series, was recently released, (titled The Baker's Dozen & the Lunatic
Fringe: Has Junk Science Shifted the Lyme Disease Paradigm). I have included
10 copies, one for each panelist to receive and review during this patient
input period. I have collected significant research sources, including
objective peer-reviewed articles, as well as FDA, DoD, NIH, CDC, published
books, CME videotapes, and other sources, and compiled them for patients,
educators, physicians, panelists, and others to review. The book illustrates
also the research behind this disease as previously published by many of the
IDSA panelists. It clearly shows the IDSA guidelines to be at stark odds
with some of the guidelines authors'
own earlier published findings. The fact that earlier claims about the
severity and persistence of Lyme disease by some of these parties do not
reconcile with their current guidelines recommendations leads us to question
the motivations of those who have written them.

That there are tremendous potential conflicts of interest at play does not
escape the public. My book helps to illustrate what some of those important
connections and conflicts may be and how they may be influencing the current
Lyme paradigm. It also closely examines the CDC recommendations set forth at
the 1994 Dearborn MI conference that was designed to standardize testing;
yet apparently simply provided unilateral opinion that appears unsupported
by scientific evidence - opinion that led to a.) the release of what is
considered to have been an unsafe vaccine by virtue of OspA sensitivity,
chronic treatment resistant arthritis of which certain panelists were aware
before the vaccine was released [evidenced by research papers]; and b.) has
also led to the wrongly promoted insensitive diagnostic tests incapable of
detecting most patients who have Lyme disease for many reasons examined;
which has thus led to c.) thousands of people like my family being
misdiagnosed, undiagnosed, and improperly treated for an organism that could
have easily been treated at onset that the IDSA panelists published was
persisting and severe; and d.) the refusal by doctors to continue to treat
patients until symptoms are gone due to restrictive guidelines and fear of
reprisals through medical board actions; and e.) the refusal by disability
and insurance companies to pay for disability and/or treatments while they
conveniently cite IDSA guidelines as mandate and not recommendation in order
to control profit margins.

And since the current IDSA guidelines appear written in a manner supportive
of this kind of discrimination, thousands have been disabled, killed, or
have ended their own lives thanks to intractable pain, severe depression,
discrimination and other factors caused by Lyme disease. If there is no
"illness-for-profit" paradigm in play, then there is no excuse to continue
to defend guidelines that dismiss meaningful research and clinical evidence,
and contraindicate access to life-saving treatments. Lyme disease is a
serious epidemic that requires open-ended treatments with combination
antibiotics to the benefit of patient wellness as long as, and as frequently
as is necessary until symptom resolution. Treatment benefits are nonexistent
under a therapeutic schedule with limited duration that abruptly ends by a
predetermined calendar date. And one which then magically changes all
remaining spirochetes into some "post-Lyme syndrome", a term that is not
only hyperbole and conjecture, but also complete and utter nonsense. I
outline how this is so within my new book which is provided for your review.

That there are those who continue to deny the existence of an organism that
has long been studied by the military in collaboration with academic
institutions as a bio-weapon; and that some of these parties, after
patenting the organisms and processes, now publish contrary to some of their
earlier research on these same organisms, is unconscionable in the public
opinion of mass majority. That some of these parties would also be allowed
to patent, profit and promote these processes by developing vaccines and
insensitive/ineffective diagnostic tools in order to promote a vaccine which
failed; while simultaneously holding patents on tests with a greater ability
to diagnose Lyme patients but refusing to develop these more accurate
processes, is also unthinkable.

Patients are imploring the current panel members to reconsider carefully the
input of patients, their treating physicians and the scientific facts that
have been formerly ignored during previous IDSA guidelines processes. The
true research evidence is in fact present and easily accessible to all who
choose to read same. Lyme disease is serious, persistent, chronic and
debilitating; and even previous IDSA guidelines panelists published these
facts - even if they choose to minimize or flatly ignore their own findings
within past and current guidelines and recent publications. For that reason,
I urge you to read fully, or at the very least, glance carefully at the
sections in my new book that discuss testing, patenting, grant funding, the
guidelines processes, persistence, testing standardization and failures, the
IDSA guidelines inadequacies/errors and the earlier research published by
the IDSA guidelines authors and their associates. Likewise, consider
carefully all submissions by those outside the IDSA academic "club" during
this public input period.

Only when you see the truth about Lyme disease, in the form of the published
research, the patient and the physician clinical experience, the revelations
of conflicts of interests in former panelists, and the extent by which the
paradigm is exploited for profit over patient welfare can you objectively,
mindfully, and responsibly create guidelines that are clearly in the best
interests of the patients they are supposed to serve - something for and
about which, many believe that the former and current IDSA guidelines for
Lyme disease have failed miserably.

It is a tragedy that patients have had to endure the kind of prejudice and
censorship that we have had over the past several decades - at times by the
very parties who are sworn to "first do no harm". We have trusted unfairly
those in the academic world who have had the power to keep us ill in favor
of research funding. We are far more educated about our illness now, with
full awareness of the political and scientific issues.
Sources like the film Under Our Skin, the CT Attorney General's
investigation, and books like mine are helping others to find those truths
and bring them into the spotlight. You merely have to look at them and
consider the impact of forcing populations to remain ill by perpetrating
ongoing myths that nobody believes or is buying except for the minority,
"Baker's Dozen".

I urge you to consider your choices carefully. Patients will no longer stand
idly by and accept what we know is not truthful. With great respect for what
you are about to( undertake, but with the personal experience that this
disease has long afforded me through decades of dealing with same, my
research work and privileges in physician and patient advocacy, I formally
request that you read the content of my new book, and put the patients first
in your guidelines review process.
Remember to "first do no harm". I include on the following pages some
excerpts from my book to facilitate your study - a book with more than 1,060
references. I collected this over a 4.5 year period, while ill, from
publicly accessible sources. My research was included in the CT Attorney
General's anti-trust investigation into the IDSA guidelines, and part of it
was shared with producers of the film Under Our Skin. Of note is that my
books are available and selling internationally through popular book
sellers. This information is not being taken lightly by your peers or by
patients and physicians the world over. And in turn we expect and request
that in a similar manner, that this information not be taken lightly by the
esteemed review panel.

(references, excerpts etc. listed on 2 additional pages not included here)

PJ Langhoff's books, including The Baker's Dozen & the Lunatic Fringe:
Has Junk Science Shifted the Lyme Disease Paradigm, are available at
http://www.amazon.com/ and http://www.allegorypress.com/

--- In LymeOz@..., Tim Tam <timtam0077@...> wrote:
>
> No worries Tim Tam i will keep plugging ahead
  thanks










> Hi Nat,
>
> Well make a note that I would go public should there be enough interest
generated by mainstream media about raising awareness with a serious story. But
I still am bound by code of conduct issues which is why for now I'd rather not,
especially if I get into more detail about my story... ie no biting of my bum...
or drawing attention to my predicament this early in testing and potential
treatment as I dont want to ruin my chances of actually getting treament because
I shine a great light on those who are trying to help. I do understand the
importance of numbers that is why I gave my story, but I have no real statistics
to give at this point other than singling me out providing my name. There is
some danger in premature action, especially in cases like mine where  those
interviewing people who would go "...so you don't have a positive...so how are
you sure u even have it?.. has a dr said u have?"...with a reply of..."umm well
not exactly etc".  u no what i mean given the convoluted controversy behind it.
I have enough trouble even convincing (or explaining) to my family about this.
>
> Timtam
>
> To: LymeOz@...
> From: natalieyoung@...
> Date: Thu, 10 Sep 2009 03:58:27 +0000
> Subject: [LymeOz] Re: Thanks tim Tam
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>                   -Hi Tim Tam , i can understand you wanting to be left in
peace but i really do need us all to stand up and be counted your story is just
more support that we need to get this disease recognised. If we dont unite we
will never be heard or listened to and many more people will suffer, i dont know
about you but i would like to prevent this from happening to other people , and
unless we identify ourselves and our stories we are buggered
>
>
>
> nat
>
>
>
> -- In LymeOz@..., Tim Tam <timtam0077@> wrote:
>
> >
>
> >
>
> > Hi Nat,
>
> >
>
> > Thx ...I have always tried to keep it together, though ironically, part of
my reason for my blog is to document my journey as I feel at times that ability
slipping away. And if anything drastic happens during treatment there is a
record of my experiences I suppose also. It wasn't actually my idea, but I do
hope it brings awareness. I have experienced discrimination in the past and so
for now I would rather stay anonymous if I can, though let me know if that
causes any drama. I am just trying to keep my life together as much as possible
and try to navigate uncharted waters - as are we all.
>
> >
>
> > Timtam
>
> >
>
> > To: LymeOz@...
>
> > From: natalieyoung@
>
> > Date: Sat, 5 Sep 2009 09:35:37 +0000
>
> > Subject: [LymeOz] Thanks tim Tam
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >                   Thanks for your story hope it will be of help for all of
us, you really have it together, if only more there were more of us that can get
together, numbers would help this cause thats for sure- but as you say there are
few doctors whom can recognise the bloody thing so our numbers would be few.
>
> >
>
> >
>
> >
>
> > Poor buggers whom just get told they have ms and actually take what the
doctors say as gospel.
>
> >
>
> >
>
> >
>
> > Hey whats your real name do you mind if i use your story and name.
>
> >
>
> >
>
> >
>
> > thanks nat
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
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> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > __________________________________________________________
>
> > Need a place to rent, buy or share? Let us find your next place for you!
>
> > http://clk.atdmt.com/NMN/go/157631292/direct/01/
>
> >
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> _________________________________________________________________
> Need a place to rent, buy or share? Let us find your next place for you!
> http://clk.atdmt.com/NMN/go/157631292/direct/01/
>

Hi Leonie,

What is working so well is the teasel set from Delta Gardens here in the U.S. It
is the flower essences. I think you would really like it and it is done by an
energy pratitioner!

God Bless You,
Cindy


--- In LymeOz@..., "Leonie" <leoniecent@...> wrote:
>
> Hi,  has anyone been able to obtain Teasel tincture in Australia and where? 
I'm still doing salt/c and herxing badly. I think it's working though.  I took a
dose of 5 grams in on single hit, for a total of 15 grams per day, and boy did I
know about it when i had the worst herx that is still going after 4 days.
Thought it wouldnt hurt to add Teasel as well...
>
> thanks,
> L
>

Hi,  has anyone been able to obtain Teasel tincture in Australia and where?  I'm
still doing salt/c and herxing badly. I think it's working though.  I took a
dose of 5 grams in on single hit, for a total of 15 grams per day, and boy did I
know about it when i had the worst herx that is still going after 4 days.
Thought it wouldnt hurt to add Teasel as well...

thanks,
L

Hi Rosemary,  if i contact Australian Biologics, what sort of test should i ask
for in terms of lyme testing ?

thanks,
Leonie

Hi everyone,

I've been doing some considerable research. On salts :-) Before I lead such a discussion, I've created a quick poll for everyone to answer. I'll leave it up for a week. And then we'll talk :-)

Regards,

Phil

Hi Timtam,

Not that what I say matters much, but I just want to support you on your
decision. I think you're doing what's right for you at this stage. The point
about not directing fire at those who try to help is definitely a good one -
though this may be unavoidable if change is ever to occur.

There seems to be movement on the Lyme issue, but I believe the momentum has
been lost before. Still, the sheer number of real-world cases and the increasing
amount of hard data surely must force the facts to the surface eventually?

I think it's important that we don't make this out to be some revenge & anger
thing. I think most of us has a genuine wish to prevent this from happening to
someone else. Perhaps that sounds a bit cheesy - food for ridicule perhaps. But
so be it  - if wishing someone else well is worthy of ridicule, then I suppose
it should be repeated a few more times - and after the tenth attack it is time
to ask which time felt better? The first? The Last? I guess we also have to
realize that it's not easy to deal with Lyme patients either - not at the worst
times anyway.

Still, I think Nat's initiative is great - a real fighting spirit. Wish you the
best of luck Nat.

Regards
/Stein

--- In LymeOz@..., Tim Tam <timtam0077@...> wrote:
>
>
> Hi Nat,
>
> Well make a note that I would go public should there be enough interest
generated by mainstream media about raising awareness with a serious story. But
I still am bound by code of conduct issues which is why for now I'd rather not,
especially if I get into more detail about my story... ie no biting of my bum...
or drawing attention to my predicament this early in testing and potential
treatment as I dont want to ruin my chances of actually getting treament because
I shine a great light on those who are trying to help. I do understand the
importance of numbers that is why I gave my story, but I have no real statistics
to give at this point other than singling me out providing my name. There is
some danger in premature action, especially in cases like mine where  those
interviewing people who would go "...so you don't have a positive...so how are
you sure u even have it?.. has a dr said u have?"...with a reply of..."umm well
not exactly etc".  u no what i mean given the convoluted controversy behind it.
I have enough trouble even convincing (or explaining) to my family about this.
>
> Timtam
>
> To: LymeOz@...
> From: natalieyoung@...
> Date: Thu, 10 Sep 2009 03:58:27 +0000
> Subject: [LymeOz] Re: Thanks tim Tam
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>                   -Hi Tim Tam , i can understand you wanting to be left in
peace but i really do need us all to stand up and be counted your story is just
more support that we need to get this disease recognised. If we dont unite we
will never be heard or listened to and many more people will suffer, i dont know
about you but i would like to prevent this from happening to other people , and
unless we identify ourselves and our stories we are buggered
>
>
>
> nat
>
>
>
> -- In LymeOz@..., Tim Tam <timtam0077@> wrote:
>
> >
>
> >
>
> > Hi Nat,
>
> >
>
> > Thx ...I have always tried to keep it together, though ironically, part of
my reason for my blog is to document my journey as I feel at times that ability
slipping away. And if anything drastic happens during treatment there is a
record of my experiences I suppose also. It wasn't actually my idea, but I do
hope it brings awareness. I have experienced discrimination in the past and so
for now I would rather stay anonymous if I can, though let me know if that
causes any drama. I am just trying to keep my life together as much as possible
and try to navigate uncharted waters - as are we all.
>
> >
>
> > Timtam
>
> >
>
> > To: LymeOz@...
>
> > From: natalieyoung@
>
> > Date: Sat, 5 Sep 2009 09:35:37 +0000
>
> > Subject: [LymeOz] Thanks tim Tam
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >                   Thanks for your story hope it will be of help for all of
us, you really have it together, if only more there were more of us that can get
together, numbers would help this cause thats for sure- but as you say there are
few doctors whom can recognise the bloody thing so our numbers would be few.
>
> >
>
> >
>
> >
>
> > Poor buggers whom just get told they have ms and actually take what the
doctors say as gospel.
>
> >
>
> >
>
> >
>
> > Hey whats your real name do you mind if i use your story and name.
>
> >
>
> >
>
> >
>
> > thanks nat
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > __________________________________________________________
>
> > Need a place to rent, buy or share? Let us find your next place for you!
>
> > http://clk.atdmt.com/NMN/go/157631292/direct/01/
>
> >
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> _________________________________________________________________
> Need a place to rent, buy or share? Let us find your next place for you!
> http://clk.atdmt.com/NMN/go/157631292/direct/01/
>

approx 10 excluding mine and yours.



--- In LymeOz@..., "natalieyoung@..." <natalieyoung@...> wrote:
>
> Hi kel how many lyme letters did you end up getting?
>

--Thanks sharon we need to unite on this one t get anywhere
I know i dont want to go on tv but after what i am going through tv is
nothing!Just got to look as crappy as possible cause i know i feel crappy

nat


- In LymeOz@..., "richerlives9" <richerlives9@...> wrote:
>
> Good work Nat!
> I'm happy to authorise the story I sent to Kelly.
> Sharon
>
>
>
> --- In LymeOz@..., "natalieyoung@" <natalieyoung@> wrote:
> >
> > Hi my local member has got right behind this lyme saga, he saw the dvd of
bernie hudson and michelle wills 1992 and he is pissed
> >
> > In letter to health minister he asks why australians are forced to go
overseas to get treatment? And why australians particulary bush workers havent
been warned about the dangers from tick bites? Her reponse will be interesting
> >
> > So i need you all to get behind me and tell me of your crappy experiences
with aus doctors and lyme
> >
> >
> > Kelly i will have to get a copy of all the letters you got
> >
> > thanks guys
> >
>

-Hi Tim Tam , i can understand you wanting to be left in peace but i really do
need us all to stand up and be counted your story is just more support that we
need to get this disease recognised. If we dont unite we will never be heard or
listened to and many more people will suffer, i dont know about you but i would
like to prevent this from happening to other people , and unless we identify
ourselves and our stories we are buggered

nat



-- In LymeOz@..., Tim Tam <timtam0077@...> wrote:
>
>
> Hi Nat,
>
> Thx ...I have always tried to keep it together, though ironically, part of my
reason for my blog is to document my journey as I feel at times that ability
slipping away. And if anything drastic happens during treatment there is a
record of my experiences I suppose also. It wasn't actually my idea, but I do
hope it brings awareness. I have experienced discrimination in the past and so
for now I would rather stay anonymous if I can, though let me know if that
causes any drama. I am just trying to keep my life together as much as possible
and try to navigate uncharted waters - as are we all.
>
> Timtam
>
> To: LymeOz@...
> From: natalieyoung@...
> Date: Sat, 5 Sep 2009 09:35:37 +0000
> Subject: [LymeOz] Thanks tim Tam
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>                   Thanks for your story hope it will be of help for all of us,
you really have it together, if only more there were more of us that can get
together, numbers would help this cause thats for sure- but as you say there are
few doctors whom can recognise the bloody thing so our numbers would be few.
>
>
>
> Poor buggers whom just get told they have ms and actually take what the
doctors say as gospel.
>
>
>
> Hey whats your real name do you mind if i use your story and name.
>
>
>
> thanks nat
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> _________________________________________________________________
> Need a place to rent, buy or share? Let us find your next place for you!
> http://clk.atdmt.com/NMN/go/157631292/direct/01/
>

Hi kel how many lyme letters did you end up getting?

HI Guys,
This is the same lady - I'm not sharing this to recommend teasel, but like she
said, it's a good news story and in the worse part of the lyme experience, we
need good new stories and hope.
I also really enjoying the content about allying with the teasel - I think
that's potent information for abx, nutrients, rife etc
Just intend or ask god, whatever your spiritual beliefs, to ally with your
chosen treatment and support for lyme. . .  it adds another whole potential to
outcomes...
http://www.youtube.com/watch?v=IZjWZ3vK1bc
Sharon

What an amazing woman this showcases...

http://www.ladybarbara.net/html/first_case.html

Sharon

Good work Nat!
I'm happy to authorise the story I sent to Kelly.
Sharon



--- In LymeOz@..., "natalieyoung@..." <natalieyoung@...> wrote:
>
> Hi my local member has got right behind this lyme saga, he saw the dvd of
bernie hudson and michelle wills 1992 and he is pissed
>
> In letter to health minister he asks why australians are forced to go overseas
to get treatment? And why australians particulary bush workers havent been
warned about the dangers from tick bites? Her reponse will be interesting
>
> So i need you all to get behind me and tell me of your crappy experiences with
aus doctors and lyme
>
>
> Kelly i will have to get a copy of all the letters you got
>
> thanks guys
>

Hi Nat,

This is really great.  Let me know what I can do to help.

I'll send you an e-mail re the letters.

KEl



--- In LymeOz@..., Tim Tam <timtam0077@...> wrote:
>
>
> Natalie,
>
> Feel free to use my blog as a reference including my story so far.
> www.lymegreenaustralia.blogspot.com
>
> Timtam
>
> To: LymeOz@...
> From: rosy1@...
> Date: Thu, 3 Sep 2009 19:41:44 +1000
> Subject: RE: [LymeOz] Local member taking Lyme to health minister
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> Natalie,
>
> That is fantastic!  Good on you.  I am so
> glad someone is listening.  Let me know how I can help.
>
> Rosemary.
>
>
>
>
>
>
>
>
>
>
>
> From: LymeOz@... [mailto:LymeOz@...] On Behalf
Of natalieyoung@...
>
> Sent: Thursday, 3 September 2009
> 6:41 PM
>
> To: LymeOz@...
>
> Subject: [LymeOz] Local member
> taking Lyme to health minister
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> Hi my local member has got right behind this lyme
> saga, he saw the dvd of bernie hudson and michelle wills 1992 and he is pissed
>
>
>
> In letter to health minister he asks why australians are forced to go overseas
> to get treatment? And why australians particulary bush workers havent been
> warned about the dangers from tick bites? Her reponse will be interesting
>
>
>
> So i need you all to get behind me and tell me of your crappy experiences with
> aus doctors and lyme
>
>
>
> Kelly i will have to get a copy of all the letters you got
>
>
>
> thanks guys
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> _________________________________________________________________
> Use Messenger in your Hotmail inbox Find out how here
> http://windowslive.ninemsn.com.au/article.aspx?id=823454
>

Thanks for your story hope it will be of help for all of us, you really have it
together, if only more there were more of us that can get together, numbers
would help this cause thats for sure- but as you say there are few doctors whom
can recognise the bloody thing so our numbers would be few.


Poor buggers whom just get told they have ms and actually take what the doctors
say as gospel.

Hey whats your real name do you mind if i use your story and name.

thanks nat

Hi my local member has got right behind this lyme saga, he saw the dvd of bernie
hudson and michelle wills 1992 and he is pissed

In letter to health minister he asks why australians are forced to go overseas
to get treatment? And why australians particulary bush workers havent been
warned about the dangers from tick bites? Her reponse will be interesting

So i need you all to get behind me and tell me of your crappy experiences with
aus doctors and lyme


Kelly i will have to get a copy of all the letters you got

thanks guys

Hi guys
Is there someone out there who would be able to coordinate tick collection so we
can test the bacterial content of Aussie ticks and once and for all prove that
Aussie ticks do have Borrelia and Lyme disease exists in Australia?

I need people in different states to coordinate collection ie: liase with Park
Rangers for collection I will pay $40 for collection of 10 ticks per ependorf
tube from  one GPS coordinates.

Please contact me ASAP

Marla