The TRAPS Support group is for everyone living with TRAPS, their carers, and medical professionals working in this field. The group exists to share information and support in dealing with this little-understood condition. While the group was started by a family wanting to better support their 4-year old living with TRAPS in Sydney, Australia, people living with TRAPS around the world are warmly welcomed to join the group and share their knowledge and experience of TRAPS with the aim of improving care, supporting eachother, and contributing to finding a cure.
A basic description of TRAPS, and links to scientific papers, can be found at:
