Support and friendship for Australian parents of children with Anencephaly, also offering support to family and friends touched by the loss of a child to Anencephaly.
The rare and devastating Neural Tube Defect known as Anencephaly touches too many people each year, and yet it is hard to find answers and support. This group was created by mums affected by this devastating condition in the hope of helping others through the grief and emotional turmoil associated with Anencephaly.
This group is a private group, you must request membership, it will be granted by the administrator as soon as humanly possible.
As this is a group dealing with the loss of a beloved child, it is appreciated that only genuine applications are made. Grief is a delicate minefield of emotions and a safe haven for expression of feelings is needed for this group to exist harmoniously, please respect the needs of suffering families.
The aim of this group is to offer support and comfort from those who know through experience, regardless of the choices made following discovery of this condition in the pregnancy. We may not always agree with each other's decisions to continue to term or choose termination, but respecting each other's choices is of paramount importance.
i just read the files that have been posted Liz... tyhat poem is beautiful. well written.. Normally i process emotuon so well by writing but with Mercy i have
Hi, im glad 3 years on you are able to share your journey with us.... Mercy Grace was born 24/9/07 and passed away in mummies arms 3/11/07. I am struggling
Hi Everyone, I just joined today. I joined a similar group about 3 years ago but I never posted anything on it. I guess I just wasn't ready. I have shared a
Hi everyone We've had some new members join us in the past few weeks and I haven't had a chance to welcome them. If you are a new member and feel comfortable
Hi Justine. Im so glad you have decided to post. Jus know that you are not alone in your emotions. I will share myself with you later.... i am struggling