Support and friendship for Australian parents of children with Anencephaly, also offering support to family and friends touched by the loss of a child to Anencephaly.
The rare and devastating Neural Tube Defect known as Anencephaly touches too many people each year, and yet it is hard to find answers and support. This group was created by mums affected by this devastating condition in the hope of helping others through the grief and emotional turmoil associated with Anencephaly.
This group is a private group, you must request membership, it will be granted by the administrator as soon as humanly possible.
As this is a group dealing with the loss of a beloved child, it is appreciated that only genuine applications are made. Grief is a delicate minefield of emotions and a safe haven for expression of feelings is needed for this group to exist harmoniously, please respect the needs of suffering families.
The aim of this group is to offer support and comfort from those who know through experience, regardless of the choices made following discovery of this condition in the pregnancy. We may not always agree with each other's decisions to continue to term or choose termination, but respecting each other's choices is of paramount importance.
Liz That is fantastic news. ill be praying for you. Its so good to hear from you as i have been thinking of you lots and how you were doing. I really hope
I am deeply fascinated wtih the heads of my living children now, I revel in their perfection.............ahhh the things I used to take for granted. Well give
Pettina, I'm so glad to hear that every thing went ok with your scan. now you just have to wait for the 18-20weeks scan so you can let us all know what sex
Thanks lea The head was so amazing. I think for now we will nickname the baby "baby bighead". ... ultrasound......and only a mum of an anen baby can fully
Phew, Pettina congratulations on making it through this very scary ultrasound......and only a mum of an anen baby can fully appreciate a lovely big head on her