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as_ap · Anencephaly Support ~ Australian Parents

Group Information

  • Members: 29
  • Category: Loss of Child
  • Founded: May 1, 2007
  • Language: English
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Activity within 7 days:

2 New Messages - 4 New Photos - New Questions

Description

Anencephaly Support ~ Australian Parents

Support and friendship for Australian parents of children with Anencephaly, also offering support to family and friends touched by the loss of a child to Anencephaly.

The rare and devastating Neural Tube Defect known as Anencephaly touches too many people each year, and yet it is hard to find answers and support. This group was created by mums affected by this devastating condition in the hope of helping others through the grief and emotional turmoil associated with Anencephaly.

This group is a private group, you must request membership, it will be granted by the administrator as soon as humanly possible.

As this is a group dealing with the loss of a beloved child, it is appreciated that only genuine applications are made. Grief is a delicate minefield of emotions and a safe haven for expression of feelings is needed for this group to exist harmoniously, please respect the needs of suffering families.

The aim of this group is to offer support and comfort from those who know through experience, regardless of the choices made following discovery of this condition in the pregnancy. We may not always agree with each other's decisions to continue to term or choose termination, but respecting each other's choices is of paramount importance.

Most Recent Messages

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Photos
Me again, just wanted to let you all know that I have uploaded some photos of the bub, thanks.
Posted - Sun Dec 20, 2009 11:18 am
jenzi83
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Hello everyone
Hello, It has been a very loonngg time since anyone has posted anything here. I hope that everyone is doing well. I gave birth to Joel on the 2nd of October
Posted - Sun Dec 20, 2009 10:54 am
jenzi83
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Some photos
Just to let you know I added some photos to my album of our family the day after Cate was born, and on Matthew's birthday (at his grave) and one of Anabelle
Posted - Tue Sep 22, 2009 8:36 am
Chris & Vanessa
chrisandvane...
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Re: Arrival of Catherine Eva Murphy
Vanessa Sound slike a beautiful day and im glad you got some extended time in hospital. I hope you got my msg on TUesday. I thought of you all day. We had the
Posted - Mon Sep 21, 2009 5:44 am
pettinabeves
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Arrival of Catherine Eva Murphy
Hi Everyone, Catherine Eva Murphy ("Cate") arrived safely on Friday September 11th, 11.18pm. She was 4.2kg (9 pounds 4 oz), and 52 cm long. I had a spontaneous
Posted - Thu Sep 17, 2009 4:33 am
chrisandvanessamurphy
chrisandvane...
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 22 13 18 10 2 3 6 5 2
2008 55 20 14 35 43 20 14 51 25 27 42 24
2007 48 1 3 1 1 11
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