Support and friendship for Australian parents of children with Anencephaly, also offering support to family and friends touched by the loss of a child to Anencephaly.
The rare and devastating Neural Tube Defect known as Anencephaly touches too many people each year, and yet it is hard to find answers and support. This group was created by mums affected by this devastating condition in the hope of helping others through the grief and emotional turmoil associated with Anencephaly.
This group is a private group, you must request membership, it will be granted by the administrator as soon as humanly possible.
As this is a group dealing with the loss of a beloved child, it is appreciated that only genuine applications are made. Grief is a delicate minefield of emotions and a safe haven for expression of feelings is needed for this group to exist harmoniously, please respect the needs of suffering families.
The aim of this group is to offer support and comfort from those who know through experience, regardless of the choices made following discovery of this condition in the pregnancy. We may not always agree with each other's decisions to continue to term or choose termination, but respecting each other's choices is of paramount importance.
Just to let you know I added some photos to my album of our family the day after Cate was born, and on Matthew's birthday (at his grave) and one of Anabelle
Vanessa Sound slike a beautiful day and im glad you got some extended time in hospital. I hope you got my msg on TUesday. I thought of you all day. We had the
Hi Everyone, Catherine Eva Murphy ("Cate") arrived safely on Friday September 11th, 11.18pm. She was 4.2kg (9 pounds 4 oz), and 52 cm long. I had a spontaneous
Vanessa. Your writings are always soo touching and beautiful. I look forward to meeting your new sweet girl and will continue to pray for you. Happy 1st
Hi Everyone, Next week is Matthew's first birthday. Today I'm due to have another baby. As the gap between birthdays closes in, I'm conscious that I may be in