Some of you may know that I am not the only person in my family to
have been touched by anencephaly or other Neural tube defects. I had
a cousin born with severe Spina Bifida who passed away and today I
found out that her brother and his wife just had to make the hard
choice to end a pregnancy at 12 weeks after finding out the bubba had
anen, this is the second of my cousins to have this happen now.

So, 3 cousins having anen babies and one cousin dying from a
NT.....God it made me feel so guilty, there's clearly no doubt that
our genepool is somehow not quite right to be doing this to our
babies. So what is going on? How do we put this puzzle together to
make sure it stops with us?

To say this has upset me is a massive understatement....nobody told me
that they'd lost the baby, why I don't know, I mean my god if anyone
could help them at the time it was me.