Hi Vanessa

I also had genetic counselling. It involved no tests but rather they
take full family history and help see if there is a higher risk than
normal of having another anencephaly baby. I found it useful in
helping me explain to others how the condition occurs. It helped
John and I understand alot better and like Leigh said ease some
guilt.

The genetic counsellor recommended some non genetic tests to be done
before falling again due to some low levels i experienced after
Bella. He encouraged not TTC again after Mery until these were
within a normal range.

How are things going for you??
--- In as_ap@..., "Leigh" <bbuddies@...> wrote:
>
> Hi Vanessa,
>
> I was also 'encouraged' to do genetic counselling, and I'm glad I
did
> as it did ease my guilt. Basically, I wanted to make sure that it
> wasn't 'me' that caused Tyson's condition and death.
>
> I can't remember if there were any tests, but I know the Dr
assessed my
> situation and past medical records, and I sat and answered
questions
> for an hour or so. I also had the chance to ask questions.
>
> The conclusion was that there was no specific reason for Tyson's
> anencephaly. I had been taking folate, and it was either faulty
(as a
> Pan Pharmeceutical brand), or not being absorbed by my body
properly,
> so therefore the risk of any future children being afflicted was
> minimal.
>
> I was encouraged to increase my dosage of folate for all future
> pregnancies to 5mg, instead of the normal 5mcg, but other than
that I
> was 'normal'. I received a written report for my records.
>
> I would say, yes, do it, to ease your mind, and also to empower
you
> with knowledge to use if you decide to have any more children.
>
> Hope this helps.
>
> Leigh
> xx
>