That was an incredible introdutory message from you Tammie (we have
another Tammie here, this might get confusing!) thank you for your
honesty and sharing your heartfelt story with us all.

I too am from a family that has been touched repeatedly by
anencephaly & other neural tube defects (on my side - make me feel
guilty much you think?)....2 of my cousins have also had anen
babies, and I lost a cousin to spina bifida as an infant.

If only we didn't have this condition in common huh! But I'm glad
that at least we all have each other, I felt terribly alone when we
first learnt of Ben's condition.

--- In as_ap@..., "Tammie" <madtado@...> wrote:
>
> Hi Everyone,
> My name is Tammie and I lost my daughter to Anencephaly
almost 9
> 1/2 years ago. It sounds so long ago, but I miss her and think
about
> her all the time. Danielle was born at 21 weeks. She passed
> peacefully in my arms. Danielle has an older sister Samantha, 10
and a
> little brother Sean 8. Three years after Danielle passed my
sister
> rang me to tell me that the baby she was carrying was also
> Anencephalic. My whole world fell apart. Lisa asked me to be with
her
> when she gave birth to her precious baby. How could I say no. She
gave
> birth to Jesse the most gorgeous baby boy. I tried to hold it
> together, but after going through the whole thing again I went
into a
> depression. Then I was told that my chances of having another
baby
> with a NT defect was 1 in 25, thats if I take the folic acid. Lisa
has
> had two healthy baby boys since she lost Jesse. Sebastian is 5 and
> Tyler is 2. I live in Melbourne and work as a Division 2 nurse. I
have
> been married for 11 years to a great man. I look forward to
getting to
> know you all and your precious Angels.
> Hugs
> Tammie (or just Tam)
> xx
>