Hi Tammie,

I am so glad you found Lea, and this group.

We are a small bunch, but unfortunately, I'm sure there will be more
members.

We lost our boy Tyson nearly 5 years ago, and somedays it seems like
it was only yesterday.

The pain never seems to end, although it doesn't seem to hit so
often, or be as overwhelming as it once was.

We do feel thankful that we had him and met him, and that he survived
long enough to allow his identical twin brother, Reilly, to grow big
enough to be born safely at 32 weeks.

We were at risk of Twin To Twins trunsfusion, and had he died in
utero, his brother would have undoubtably been severely brain
damaged, or worse.

The guilt knowing that this could have somehow be prevented can wear
you down.

We had so many people telling us that we should be positive, that
when he was born, that it might not be as bad as they (the Drs) think
and that he may survive. But they never saw the U/S and the brain
matter floating alongside an otherwise perfectly formed baby boy.

I mean modern medicine is wonderful, but not that good.

These same people also told me that I was lucky to still have one!

To have him born alive at a time chosen by the Drs in order to save
Reilly was like pulling the plug. He was happy and alive and doing
all the 'normal' things in the womb that any baby does, and yet we
pulled him from that world and he died approx. 10 minutes later, on a
bleak hospital humidicrib, surrounding by nurses performing APGAR
tests on him, and before either my husband or I got to hold him.

We have lovely pics, and we got to keep him with us overnight, while
Reilly was taken directly to Intensive Care, but I will always
remember kissing Tyson goodbye early he next morning and watching
from the hospital window as the nurse took him along the bottom
corridor of the adjacent building.

So, I am sad to say it, but welcome to the group. I hope you find it
to be somewhere to come and vent and cry, and hopefully laugh
ocassionally too.

We are here whenver you need us.

Leigh
xx

--- In as_ap@yahoogroups. com.au, Tammie Robertson <abbey_april@ ...>
wrote:
>
> Thank you for accepting my request. My name is Tammie I am married
from Melbourne with 2 children Abbey Rose 6yrs old and April Marie
(dec). April Marie was a anencephaly baby she was born on the
19/04/07 so not so long ago. I have been finding it a bit difficult
to find any support in our community and I thank you for setting this
site up as there are plenty of people that need the support you have
offered. Once again thank you for your help you have been wonderful.
>
> Send instant messages to your online friends
http://au.messenger .yahoo.com
>