I would like this group to bring together those who suffer directly and indirectly from this terrible disease with Australasia region in mind. It may make it easier for people downunder to exchange ideas, advice, thoughts and support within our time zones. I am australian mother who has been watching my family being ravaged by HD and I am aware of need for support and understanding in such grave times. So do come out, it helps to talk with each other.


Photo - from left - my grandson Michael, my son Steven[advanced HD] and myself