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All Categories - All/Health & Wellness/Support/Diseases and Conditions/Craniosynostosis/


    Groups List

  • ~~VISIT ***www.CAPPSkids.org*** for more information and additional support ( www.cappskids.org/board/ )!! ~~Has your child had craniosynostosis or recently been diagnosed? Is your child currently being...
    332 members Last activity Apr 8, 2014
  • Group that allows free discussion about Endoscopic procedure for parents of children that have craniosynostosis. Frank discussion of all pros and cons as well as tips for surviving the experience. NO...
    175 members Last activity Sep 6, 2013
  • Craniosynostosis is a very divestating word to hear, their are many aspects of it. The initial shock of finding out your child has it, the discussion of major surgery, and then the surgery itself. You are told...
    44 members Last activity Jun 7, 2013
  • Craniosynostosis
    84 members Last activity Sep 3, 2013
  • This group is for parents who have children with Craniosynostosis and or any syndrome related to it. It is a long, hard road that we face but helping each other and having other people who understand what we are going...
    18 members Last activity Jan 7, 2013
  • In 1999, the national non-profit organization Craniosynostosis And Parent Support, Inc. was established by a mother whose child had Craniosynostosis to offer support and information to other families...
    16 members Last activity Jul 29, 2010
  • This is a group to just share your feelings,any questions or just to chat about how craniosynostosis has touched your life.
    41 members Last activity Jul 17, 2012
  • families that have had craniosynostosi in there life
    34 members Last activity Jun 14, 2012
  • Hi and welcome to Craniosynostosis Support. The groups aim is to bring together affected individuals, their families, friends and associates for email support, discussion and research. My...
    5 members Last activity Dec 15, 2009
  • Consults about diagnose and treatment of Neurologic Patology
    4 members Last activity Dec 18, 2009